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Monday, August 22, 2005 5:10 PM CDT
Returning to July 20th – August 13th
What a long three weeks! Cervical spine surgery was nothing like I thought it would be and jumping onto the operating table and screaming, “Fix it!” turned out to be a very scary and uncomfortable event! If there is a next time, I may not be so zealous to meet the scalpel!
As uncomfortable as the before and after effects of two herniated disks may have been, I survived. I’m still not sure if I have “fused” and will not know if the surgery has taken effect for a few more months. If the surgery does not work, I’ll have to return and a piece of bone from my hip will have to replace the artificial piece that is currently being used. The thought of returning makes me nauseous so all I have is hope and prayers that the artificial piece takes hold. Removing bone from the hip area is very painful and if I can avoid it, I will.
I’ve never liked anything around my neck and the surgery area was so painful. The first few days I was unable to swallow anything but soft foods. I’m still occasionally sleeping with an ice pack across my throat, but not like I was a few weeks ago. The ice is soothing and tends to distract my mind from an incision that is way too close to my trachea!
After surgery I had five days at home to recuperate. Those five days alone did nothing but make me miss Kaitlynn so I went back to work six days post op. I really thought I could handle the fast pace but soon learned that after four hours I was extremely exhausted.
I should have taken a few weeks off but I just felt so guilty knowing everyone was working short handed. I survived though…fatigue and all was better than sitting at home with a broken heart. I dug right into the job and each day that passed I regained a little more strength.
I think between the nerve pain I was having, the surgery, the medications I was on, Kaity’s one year anniversary, a change in job assignments, and Josh leaving home to travel with Brian was about more than my plate could hold. I was on stress over load and the tears were flowing daily.
The tears soon abruptly stopped and if you stay
with me I'll tell you why.

Wednesday, August 24, 2005 5:36 AM CDT
I was telling my sister-in-law (Aunt Rhonda) that July and August 2005 has been the worst two months of my entire life. I know you’re thinking how could that possibly be? But this summer is going in my journal as the worst ever.
July felt like a pressure cooker that started out at zero and by the middle of the month was whistling Dixie. It was nearing explosion and the cervical surgery was just the extra heat needed to blow the top!
FYI: I for one know that pressure cookers do explode. My sister Rebecca has green beans on her ceiling to prove it.
I felt so sorry for the person who dared ask me, “Hey Jess, how you doing?”
They would either get an ear full about how bad it was or quickly made a
retreat when the tears began to flow. I scared one girl so bad with my sobs
that she avoids me every day now.
My oldest child, Josh, has found that if he applies to every credit card company in the United States, they will mail him a piece of plastic in the mail. Oh the joy of running up a credit card, or maybe three or four while we are at it.
Josh has been an electrical apprentice with a company in Louisville for a year now. He was making fairly good money but by the time he paid all his creditors he was lucky if he had twenty dollars left to last him all week. It was difficult sitting back watching him make mistakes.
The day finally came when I decided to clean house. The last drawl was the creditors that were constantly calling my house. I confiscated everything that had his name on it. I told him if he wanted to continue to stay here I was taking over his budget…or lack there of a budget!
Back in March the engine blew up in his NEW car and he had to order an engine to replace the one he had lost. Now he has two payments. One for the new car and one on a new engine…of course all his credit cards are added to the list. While we waited three months for his new engine to come, his Dad reluctantly let him drive his truck back and forth to work. (Work being 30 miles one way into the city). In the three months that Josh had his Dad’s truck, he wrecked it three times. You read right…THREE times.
The third time was “his charm” and he left his Dad’s truck stranded on the bridge entering into Louisville with miles of traffic behind him. The air traffic controller reported, “I-64 East bound blocked due to a wrecked truck.” Luckily he scathed by unharmed once again. This makes Joshua’s fifth…maybe sixth wreck I believe. I’ve decided that he’s a cat. The boy only has three more lives to go before the big one hits.
I worry myself sick with fear every time he gets behind the wheel of a vehicle. I’m so afraid that his recklessness is going to leave me completely childless. I’ve already lost one child and the fear of losing another one is just mind boggling. I just pray Josh grows up soon and begins to realize how dangerous he is on the road. Another big fear is that he will hurt someone else and that he will be left to live with the misery of the harm he has caused.
Once you lose a child a sense of uneasiness sets in because all you can think about is, “Who’s next to leave me?” My husband? My best friend? My 20 year old reckless driving son? Losing a child not only leaves a gaping hole in your heart, but it instills fear of losing others as well. Sometimes I find myself praying that if anyone else is to die, let it be me instead of them. At least then I will not have to live through the pain again.
I know you are wondering when the angel stories will come into play and Kaitlynn does come to my rescue, but first I have to get all the other crap off my chest before I’m a green bean on the ceiling.

Sunday, August 28, 2005 1:28 PM CDT
(2nd Entry for Kaity’s
one year anniversary week)
To Everyone, Thank you so much for continuing to visit. I find it so heartwarming to hear that this journal has touched a few lives and I hope it continues to do so.
Let’s see…where was I? Oh yes, excruciating nerve pain followed by Cervical surgery, pain meds…which did nothing but make me sleep and cry… A drastic change in job assignments…which I haven’t written about…a reckless driving, in debt to his eyeballs, testosterone filled 20 year old son, and my daughter’s one year Angel Anniversary. That pretty much covers the major problems.
Some of you have read my entire journal so you will probably remember this entry. It was posted last August, 2004:
Brian and I returned home Thursday evening to instantly notice how many blooms were hanging on the Moon Flower bush. There were 12 beautiful blooms but since Kaity was 13 we knew that we had to be missing one. We frantically recounted but still only found 12. Brian paused and said, “Honey what is today?” Of course I was oblivious to the date so he told me, “Today is the 12th.”
There was more to this story and I didn’t tell you exactly what happened. I left out a huge detail because I was not quite sure how I could explain in the right words where non-gardeners would understand. To be perfectly honest, I didn’t believe it myself and it has taken an entire year of evaluation on my part. After this years batch of Moonflowers, I knew I had to try and explain.
Moonflowers are somewhat like Daylilies. Daylilies derived their name because they only bloom for one day and then another comes along to take their place. Moonflowers are also much like petunias. They bloom one day then they start to wilt, and if you don’t de-head them, they will stop producing flowers. Moonflowers are a little bit like roses too! They have a bud that sits for a few days and finally that bud will open to show its beauty.
I was so anxious to see the Moonflowers again this year because I had to see if what they did on August 11 and 12th, 2004 would happen again. I had thought about it for an entire year and my main goal was to “recreate” what I saw, but it didn’t happen. Lord knows I tried!
I watched the Moonflowers every single day last year and even more so this year. The end of a Moonflower pod will open and each day the bloom works its way out a little farther. Around the 3rd or 4th day the bloom will open in the evening. The next day the sun will hit the bloom and it will wilt over and hang lifeless. One day of beauty…that’s all you get!
Each day I go out and pluck the old blooms off and you can clearly count the new ones that will be opening that night. You can tell because they slowly work their way out of their pod until they are approximately four inches long. Those are the ones that you can count on blooming!
Last year, on August 11th, 2004, Kaity had been gone two days. We had already had a special day on the 9th when nine flowers bloomed. The 10th was uneventful with only a few blooms and the 11th followed suit with an uneventful amount. The week was very busy with the funeral so on the 11th I didn’t make it outside, like I do every morning to pluck off the old blooms. When Brian and I returned the evening of the 12th after visitation at the funeral home, we counted the flowers and there were 12! You’ve heard this story but what you didn’t know was I had left the wilted blooms from the night before. I do not remember the total that was left hanging and sadly I did not write it down, but with the wilted flowers there were a total of twelve blooms.
I ran for the phone and called my best friend Donna. I was so excited and I told her, “Donna, some of the flowers re-bloomed from last night and now there are a total of twelve!” Brian was with me and heard the conversation, but just like Donna, neither of them seemed impressed that some of these flowers had re-bloomed. Aggravated with their lack of excitement, I didn’t write about it, but I knew in my heart what I saw.
No one else had watched the flowers like I had and I know there were wilted ones that were left behind from the previous night. Upon closer inspection I remember seeing that indeed the wilted ones were more of brown color and not as pure white as they had been the night before but nevertheless they had re-bloomed. I simply was not sure what to make of it. I thought it was phenomenal but no one else seemed to be impressed, so I left the matter alone and chucked it up as an explained moment. I wish now I had written about it, but I did not.
A year has since passed but thoughts of the Moonflowers have always been in the back of mind and I could not wait until spring of 2005 to see if what happened was delusional grief or a true Angel moment. I waited patiently for the new batch of flowers and finally this summer they started to bloom again.
This year I planted the seeds from “Kaity’s original plant” all over the place! One spot after another has a Moonflower plant. I sat my lawn chair in front of the first blooms, grabbed my coffee cup, and I waited. I cried when I saw the first ones bloom and the aroma suddenly brought back so many memories from last August. Many tears were shed that very first night.
I was sad but also very excited to see them return. I was also a woman on a mission and I had a plan for the Moonflowers! This year, after the flower was finished blooming, I would leave the wilted bloom to hang to see if any of them would miraculously return. I felt the need to scientifically give an answer as to how wilted Moonflowers came back to life!
Night after night I let the previous night’s blooms hang dead. I would go back out in the evening to see new flowers, but also would see the wilted ones from yesterday still hanging dead and ready to be plucked off. All summer I’ve done this and not once did any of the wilted blooms come back to life.
So much for scientifically explaining that incident! Now I’m trying to second guess myself by saying such things as, “Maybe there weren’t wilted flowers there…after all it has been a year and you were grieving and you didn’t write it down so no one will believe you anyway!”
I know what I saw and I know I’m not crazy, so after one year I’m concluding that it had to be a very large sign from Mother to Daughter. Only I would know the pattern of those flowers and only I knew that my wilted Moonflower blooms would not come back to life on their own. They had a little help that year.
…Please don’t go away because there’s a little bit more! After all, don’t you want to hear about what Josh is doing now?

Thursday, September 1, 2005 4:33 PM CDT
(3rd Entry for Kaity's Anniversary Week)
Kaitlynn’s one year anniversary was much more difficult than I had anticipated. It’s hard to describe the emotions that Brian and I experienced. Just looking at each other brought tears to our eyes because we knew what the other was thinking and feeling.
I store a box of fall flowers in the same closet as my Christmas supplies and I should have used some of the arrangements for Kaity’s gravesite, but after work on Monday the 8th, I traveled to the city to purchase new supplies. I had a cart full of flowers and other grave site decorations and arrived home around 7pm.
We have a “romping room” in our house where we do most our hanging out. You can gain entrance to this room from the back door. “Back door Guests are Best!” We keep a table in this room for company, my computer and desk, a coffee pot and even a small refrigerator that holds soft drinks. We call this room the office, but with as much activity as it gets, it is more like the focal point of our home.
Brian arrived shortly after me on the 8th to find flowers everywhere in the office. I had since dug out the big box of fall flowers I had stored away and also had the new flowers I had just purchased. There were flowers strung everywhere! “Good Grief!” he said as he looked at the orange and yellow colors that filled the room.
We talked for awhile but it was getting late. I was only able to finish the vase arrangements. I wanted to finish the wreath I had purchased but decided to wait until after work on the 9th. I was so tired and emotions were already running ramped so we decided to turn in for the night.
Every single second of August 8th and 9th were filled with thoughts of “Where we were this time last year?” Instead of making a cot and sleeping at the foot of my daughter’s crib, I was instead going to sleep with my husband. As I walked past where Kaity’s bed used to be, I just wanted to stay there. Everything seemed so real, as if it was all happening again.
Brian and I awoke on the 9th and had a little time together before I left for work. We went outside to count how many Moonflowers we would have that night for her anniversary. I walked from plant to plant trying to find blooms that were ready, but I only found ONE flower that was going to bloom. I couldn’t believe that from all the flowers I had planted that we were only going to have one flower! Brian said, “Are you sure there’s only one?”
I sensed his disappointment because the Moonflower beds have grown to be a special oasis for the two of us during our grief so I said, “Yep, one flower for Kaity’s One Year Anniversary! That’s all she needs…one beautiful flower!” As Brian walked me to my car he said, “Wouldn’t it be something if we had 13 flowers tonight?”
All day at work I tried my best to hold my composure. My eyes were swollen from crying myself to sleep the night before and I really did not want to be at work. Donna had left me a single yellow rose on my desk and it was the first thing I found when I arrived. Finding the rose started the tears again and I was asking myself why I had even attempted being there.
It’s difficult to work when you are sad. Co-workers fly past you all giddy. I suppose it did help because once I started working the time did fly by. At lunch, our nurse practitioner stopped me in the parking lot. Since I had just been through surgery she was worried by my disheveled appearance. I explained to her that today was Kaity’s one year anniversary. She said, “Oh honey” and hugged me. That was all it took for tears to start again. Luckily, I only had a few episodes at work and we were so busy that 4:00 came very quickly.
Brian picked me up at work and he had a few errands to run. I kept an eye on the clock and was determined to be home by 4:47. We made it and at the precise time our daughter had passed, we stood in the spot where she had gained her angel wings one year before. With tears streaming down our faces, we stood arm in arm and I said a silent prayer for my daughter. I prayed she would visit us and help to relieve our grief. Mostly I prayed that she would leave a mark that would convince her Daddy that Angels do exist!

Friday, September 2, 2005 4:52 PM CDT
(4th Journal Entry for Kaitlynn’s
Anniversary Week)
August 9, 2005 Once Brian and I had regained our composure I continued working on Kaity’s flowers for her grave site. One set of fall flowers that I really wanted to use was a streamer of leaves. I tried everything to make them look right on Kaity’s vases. I wanted the streamers to drape over and hang down, but no matter what I tried they just didn’t look right. I threw them back in the box and decided to use them somewhere in the house.
The grave looked very nice when we were finished. I put all the remaining flowers in the storage box and shoved it under my desk. Rhonda, George and Josh spent time with us that day and we had a few moments at the grave before we released balloons to heaven in Kaity’s memory. We all went for dinner and before we knew it the day was almost over. It was sad for me because I hadn’t heard from Kaity and my heart was breaking.
As dusk approached we returned home to find she had visited while we were gone! We had not ONE Moonflower, but thirteen!! Thirteen flowers for the thirteen years she had blessed our lives! It was the end of the day but Kaitlynn had finally made an appearance and I was overjoyed. My husband said, “I thought you only counted one flower?!!?!” I just smiled because I knew Kaity had been there. I knew it with all my heart.
Brian said, “Can you believe these flowers???” He was so happy to see thirteen of them, but I still got the impression that he didn’t quite believe it was Kaity. He was still holding onto the fact that it could be “coincidental.”
The next morning (the 10th) we spent time together in the office before I had to go to work. I always get up three hours before I actually have to be there. By getting up early I have a little extra time to catch up on the forum, or like on this particular day, have coffee and visit with my husband.
We had been walking through the office all morning and on our last trip through we found a little surprise sitting in the middle of the office floor. I stopped dead in my tracks and asked Brian, “Did you move that box out in the middle of floor?” He said, “No, I didn’t touch it!”
In the short time that we had traveled from the kitchen back into the office the box of fall decorations that I had placed under my desk had been moved to the center of the floor and the streamer of leaves, that had caused so much aggravation the day before, was lying on the floor beside the box. I knew Kaity had put the box there. She knew it would be an unmistakable sign that she had been there. She would show BOTH of us (not just me) that she was very much a part of our lives. You can imagine my disappointment when my husband said, “Oh honey, THE CAT must have moved it.”
I looked at him as if he was off his rocker and said, “Brian, the box weighs at least 30 pounds. I can see the cat pulling the flower streamer off the box and dragging it to the middle of the floor, but are you really trying to convince me that in the five minutes that we were in the kitchen the cat shoved a thirty pound box three feet across the floor?!??! Kaity moved that box not the cat!! I’ve been telling you that she comes to visit but you won’t believe me!! Unless there was an earthquake that moved this floor and made that box jump three feet…you will never convince me that our fat, lazy, five year old cat has suddenly developed the power of Hercules!”
Dumbfounded at his suggestion I walked to the back door to leave for work and he followed me out. As he shut the door he said, “Be good while I’m gone Kaity!”
Hummm…maybe the old dog is finally starting to believe in Angels!

Wednesday, September 7, 2005 6:16 PM CDT
(5th Journal Entry for Kaity’s Angel Week)
Brian came to pick me up at work later that afternoon. I came through the back door and dropped all my belongings on the table in the office. I had shoved the box of fall decorations back under my desk that morning but I hadn’t really paid attention to the label on the box.
I’ve had this box for about 10 years. I had saved it from one of my Avon shipments. Because of its size I thought it would make a nice storage box. On one side of the box is written “Fall Decorations” in my hand writing. On the other side is a stamped label from Avon. It reads:
Angelic Light Porcelain Angels – Qty 6
Brian followed me in the door and I said, “Honey…read the side of that box!” His mouth just dropped as he looked at me in amazement.
That was just a little extra “something” about our week that I had to share. :)
The Moonflowers continued to put on a show the remainder of Kaity’s Anniversary week. We had never seen so many blooms. Every night we counted them and wrote the totals on our calendar. On a “regular week” we might have seen 10-15, but the flowers were really putting on a huge show! 25, 54, 57! By the end of the week we had over 178 blooms from August 9th – 13th and just like a light that was switched off, by the 14th the show was over. Two flowers…maybe three a night, if we were lucky. The plants had bloomed so much there was nothing left to show!
What an angelic week we had…What a truly awesome show of events! Who could weep after all that? Who could be sad? Once again our spirits were lifted and Kaitlynn reminded us that she’s only a heartbeat away.
________________________________________________
I promised to tell you what Josh is doing, so here is the latest:
A year ago Josh wanted to travel with his Dad, but since he had applied for a local electrical company we nudged him in that direction. Brian knew that Josh was a hard worker but was leery about having his son work in the same company where he was a crew leader. Joshua’s final decision was to work locally but traveling with his Dad and Dufrene Machinery was constantly in the back of his mind.
With gas prices sky rocketing it was costing him $69 a week to fill his Dad’s gas guzzling truck. That’s a lot of money for a 20 year old making $11.00 an hour. In addition to his weekly expenses the electrical company also deducted the price of his tools, his insurance, and his apprenticeship fees. They were not offering him any overtime so for the last several months he simply could not make ends meet.
While discussing the issues of “what to do now,” Brian mentioned to Josh about applying to Dufrene Machinery. At least on the road he would have $30 a day meal allowance and wouldn’t have to buy gasoline or have any other work related expenses! Josh was eager to mail off his resume and he was hired on August 12th.
All of Josh’s life his Dad has always traveled. That meant that Josh was the man of the house 90% the time. He’s always taken care of me and Kaitlynn. After Kaity passed away and Brian went back to work, Josh stepped back up to the plate as being “man of the house” just as he’s done all his life.
It was nothing for him to call me and say, “I’m on my way home from work. Get ready and we will go out to eat.” If he saw my car at the cemetery he would follow me there. If he saw me crying he had to know why and would offer his support. If I was late getting home from work, he would call my cell phone to find out where I was.
Josh and I have spent the last year doing things together that we were never able to do before. We’ve grown so close and that is why I felt it was very important for him to know that it was okay to take this job.
I planned a “sit down talk” that turned out to be very emotional. Because of my tears, half of what I said he probably didn’t comprehend but he listened nonetheless. When I was finished he came over to me and laid his head in my lap and said, “I love you Mom,” and we both shared a few more tears. Once we had our talk he started packing and two hours later he was ready to go.
After living nearly half my life with a traveling man, I’ve grown accustomed to seeing my husband leave, but it was different with Josh. I walked him out to his car, flaunting a fake smile and waving goodbye. I didn’t want him to know what I was dreading the most…
Empty Nest Syndrome! ____________________________________________
Today is September the 7th. I have survived the last few weeks with Josh being gone. The first few nights were pretty rough. Being totally alone at night was really bothering me, but after a few nights it got easier. The house has been very quiet but it has given me time to write and to do things that I wouldn’t normally do with a house full.
Josh has received his first paycheck and was completely flabbergasted that he earned THREE times the amount he was making with his former employer. Not only that, no more buying gas or driving 50 minutes back and forth to work everyday!
I was able to drive to Bowling Green, KY over Labor Day weekend. Both Josh and Brian were working there and I was able to spend a few days with them. Tonight they are driving home and will be here through the weekend. Finally some noise to liven the place up a little!
Thanks to everyone for reading the journal the last few weeks. It was a lot of fun to write and I hope that it touched your heart in some small way.
Love to all, Jessica

Wednesday, September 14, 2005 7:09 PM CDT
Hello everybody!
I don’t write as often as before mainly because I don’t really have anything exciting to report! My life is pretty humdrum and consists of working, eating and sleeping.
However!!! I am trying to get to the Slawson’s MPS Walk/Run in Laverne, California again this year (October 22nd) so that is pretty exciting!
I was approved for my vacation days but I fear Brian may not be as lucky. He is trying really hard to make it work. I don’t want to go without him so hopefully we will have a definite answer in the next few days. We’ve already priced airline tickets and surprisingly enough they were fairly cheap...which came as a shock given the ever soaring gas prices! Brian and Josh left today for Texas. I was so happy that they are working at the same location again. This is Joshua’s first trip out west and he was really excited about going. He purchased a new set of luggage for the trip so now he’s flyin’ in style!
He was packed and ready to go the day before his flight.
I talked to them both just a few minutes ago. Josh seems to be on cloud nine and really likes the location of the job. Brian said that he should know something about his vacation days tomorrow so please say a little prayer for us. I would love for Brian to meet all the families in California!
Have a great week everyone! Hugs and kisses to each of you! Jess

Monday, October 17, 2005 5:22 AM CDT
Hello everyone!
It has been really busy since last month. We have been giving flu shots at work and the doctor’s office has been non-stop the entire month. Everyone is already exhausted and it’s not even “flu season” yet!
In addition to working my tail off, I’ve also been seeing numerous specialists. Several health issues have escalated since my spine surgery in July. Since Kaity was born I’ve always had heart palpitations but they have become a lot worse in the last year. I had to wear an event monitor this month which showed an irregular heartbeat. The cardiologist ordered a stress test and echocardiogram and said that medication will probably control the Arrhythmia, but he first wants to run more thorough tests.
Since I originally went to my doctor with an irregular heart beat, headaches and shortness of breath, an MRI of the brain was also ordered to check the status of my pituitary tumor. In 2000 I was told that the tumor would not cause problems and would more than likely never grow, but it has quadrupled in size. I had to see a Neurologist on Friday the 14th and he is sending me to yet even more specialists. First will be an endocrinologist. She will help the Neurologist decide if the mass is functioning or non-functioning.
Functioning would mean that it is producing an excess of hormones. Non-functioning would mean that it’s just a mass sitting there causing my headaches. If they determine that the mass is a tumor, they can try medications to shrink it. If they determine that the mass is cyst, they will have to take it out because medication will not shrink a cyst. None of this can be determined until the hormones are tested. The doctors highly suspect a non-functioning tumor or cyst since my baseline blood tests for the prolactin hormone have all come back normal. I’ll be very interested to talk to the Endocrinologist to hear her opinion and even more interested in learning the hormone level results. Perhaps some of my ongoing symptoms will finally have a diagnosis.
I also have to see an Ear, Nose and Throat doctor. The ENT will decide the best passage to retrieve the mass if surgery is required. The surgeries are fairly easy and the mass is reached through the nasal passage. *Cringe! If the mass is functioning and has destroyed part of the pituitary tumor, hormone replacement therapy will then be discussed.
So there I am. No treatments will be established until all of the doctors give their opinions.
On a lighter note! Brian and I are headed to sunny California this Thursday. I can’t wait for Brian to meet all the kids. The MPS walk/run will be this coming Saturday. Brian and I also have plans to either tour Hollywood or go to the beach…or maybe both…who knows! We are just going to relax and have a good time. We can’t wait!
Josh really likes his job with Dufrene Machinery. He has only been home about 10 days since August and has requested to spend most of his time on the road. He has paid off a great deal of his debts and has now bought a laptop computer to take with him. We have had a blast emailing each other everyday. This month he has been to Texas and California and is currently near Virginia Beach.
Kaity has been extremely missed this month. I think it is because of all the sick children on the forum. Several of our forum family members have lost their children in October and it has broken all of our hearts.
It is so difficult knowing the pain that the parents are going through and not being able to help them. All I can do is offer my prayers that they find peace during the passing of their children. Currently there are several parents on the forum whose children are in their final days. Please keep these parents in your prayers and also those who have recently lost their children.
Love, Jess
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Kaity, I hope you like the new additions in your Angel garden! I bought miniature hostas named “Hope” and “Cherish” and they are so adorable! I didn’t know that miniature hostas even existed! I also bought one named “Baby Face.” The lady I bought them from is looking for the one named “Katie.” It will not have the same spelling as your name but that’s okay!
Next spring I plan to look for more of the purple flowers that are blooming back by your fence! Aren’t they adorable? They have bloomed ALL summer long and here it is October and they are still going strong! Their garden nickname is “Angel Eyes” and I absolutely love them! Prayers going up that I can find them again next year! I’m going to plant a bunch more if I can find them.
I love you baby. Thank you for constantly being in my life. Not a day passes when I do not feel your presence watching over me.
Love, Mommy

Thursday, October 27, 2005 8:27 PM CDT
Hello Everyone!
We are home from California! We had a great trip and really enjoyed seeing all the MPS family members again. Brian met many of them for the first time and now he’s got a few more to add to his “favorites” list!
We flew out Thursday night and arrived in Ontario, California around 9pm. The hotel was about 20 minutes from the airport in San Dimas. Friday morning and afternoon was our time. We awaited
for the other MPS families by shopping for a digital camera and then drove to Hollywood.
Hollywood was nasty and dirty and most of our time was spent in a rental car trying to get back to the hotel. Due to the treacherous traffic it took us two hours to get back to San Dimas. The only thing that excited me about the trip was seeing the sidewalk on Hollywood boulevard, the Capital Record building and the Hollywood sign. The rest was definitely not what I expected!
Friday night we visited with Alicia, Ciara, Jennifer, Ashley and Allison. The Restemayer’s had spent the entire day at Disney Land so it was mine and Brian’s job to learn all about Disney through the eyes of Miss Allison. (Alli is 4 years old with Hurler Syndrome and she is currently on enzyme replacement therapy - ERT). What a fine story teller she has grown to be. We were so happy to see how well she is doing.
Saturday morning we headed to the park for the MPS Walk/Run hosted by the Slawson family. There was quite a large turnout this year and it was so much fun introducing “Donald Duck” to all the families on the West Coast.
After the walk we returned to the hotel for a power nap and then visited with the Slawson family for an informal get together. Brian and I were on cloud nine visiting one on one with the kids.
Sunday morning we had breakfast with Jenn, Jim, Ashley and Allison before they left for the airport. We hated to see them go and wished our time together had been longer. Miss Alli was getting tired and was giving her Mom and Dad a hard way to go on Sunday. I guess she was feeling the effects of a long trip from North Dakota, a visit to Disney Land, and playing with all the kids at the walk/run.
Sunday afternoon Brian and I shopped in San Dimas at several antique stores then we traveled from San Dimas to Glendora and Azusa which consisted of traveling on the west coast end of Route 66. We drove around subdivisions and checked out awesome houses and landscaping. Then we found a road that took us up into the mountains.
The entire day Monday was spent traveling home. We lost 3 hours with the time difference so it was 6:30pm before we finally got home. We were exhausted but we would do it again tomorrow if we had the chance!
Love to everyone and thanks to Tami for making the California Walk such a success!
Love, Jess

Thursday, November 10, 2005 9:01 PM CST
I feel so blessed to have so many dear friends. I often receive gifts, cards, emails and private messages from members on the forum. (
MPS/ML Forum Dot Com ) I may not get back to you as quickly as I would like and I apologize to each of you if I have not replied.
Life is so hectic isn’t it? I tell myself, “You better write Sue” or “You better call Mary” and then before I know it days and then weeks have slipped by. Since I started working full time it seems as if I live for the weekends and I try to cram everything into those two days. There never seems to be enough time to spend with my family and friends and before I know it Monday has rolled around once again!
Besides my fulltime job, I also spend a great deal of time on the forum. The forum gives me strength and it keeps Kaitlynn’s memory alive. Without my friends, I would be lost and I fear my daughter’s memory would begin to fade. By continuing my work her spirit remains very strong within me.
Our support group has grown so close and each time we lose another child to MPS or ML it shakes our little “island” with grief. Often I try to find the words to comfort the parents and also our forum family, but sometimes words and actions simply fail me.
I know that it is difficult supporting families who have lost loved ones. It’s never an easy job finding the right thing to say and often we feel so inadequate. But thank you to those who find the strength to offer support. Thanks for opening your hearts and souls to fellow MPS/ML friends during their times of sadness and grief. I have no doubt that your Courage will be rewarded.
It’s hard to believe it is November and Christmas will soon be here. Where has this year gone? Other than working and waiting for my husband to come home (hopefully tomorrow), there’s not much else to report. My gardens have all been winterized and I’ve collected hundreds of Moonflower seeds! I miss my flowers already and I absolutely detest this time of year. I’m already counting the days until spring.
Josh has put a deposit on an apartment and he will be moving into his new home on January 7th. I have mixed emotions about him leaving. Part of me wants him to go so he can learn to take care of himself, but the other part of me is worried sick! My main worry is the way he manages his money. I suppose he will soon learn and more than likely he will learn the hard way!
I traveled to Georgetown, KY last weekend with my sister Rebecca. We attended the funeral of Tyler Deskins. He was only 22 months old with Hurler Syndrome. It has been a very sad time for us on the forum. Tyler was our “forum baby” and we all cared very much for him. Please keep his parents, Jennifer and Kent in your prayers.
This weekend is the MPS/ML conference in Arizona. Since Brian and I traveled to California in October we did not make plans to go to Arizona. I wish we could be there and I will miss seeing all the families. In the meantime I’m counting the days until next year’s conference which will be in Cincinnati, Ohio!!! That’s less than a two hour drive for us so we are really excited! Brian heard that “King Zach” will be there and he’s already shining his suitcase!
Brian and I ordered a wall unit/office desk from Oak Express! They should leave the “Express” out of their name because it’s anything but that! We’ve waited nearly seven weeks for the furniture and found out a few days ago that all the pieces have finally arrived! Brian is coming home this weekend so we get to go pick it up on Saturday. I’m so excited! I’ll take photos to share with everyone once it’s all set up. Now that I’m in the digital camera swing of things I can do that!
Love you guys and I'll write again soon! ~Jess

Monday, December 12, 2005 6:26 PM CST
I know everyone thinks we have fallen from the face of the Earth! We are here; we’ve just been super busy! Between work, the holidays and helping Josh prepare for his move, it has been a very hectic winter. I’ve been doing a lot of shopping for Josh since he needs so much for his apartment. It has been loads of fun buying for him this year!
Brian and I got our new office furniture set up and it absolutely beautiful! I wanted to post a picture for everyone but my scanner is on blink. Maybe next time!
A few of you have asked how my test results have turned out. I have nothing to report yet because I moved all of my appointments to January the 8th. On that day I see the Endocrinologist and the Ear, Nose, and Throat doctor. After giving a ton of blood for the endocrinologist, I’ll then make a follow up appointment with the Neurosurgeon. Together the three doctors will decide how best to treat my Pituitary tumor, either with medications or to surgically remove it.
I also need to have a stress test and echocardiogram for my Arrhythmia. I’m not sure when I’m going to be able to make those appointments. It is so difficult trying to work and see all of the doctors I’m supposed to see! I know one thing is for sure, I won’t be putting my care off much longer. My symptoms are getting worse as each month passes.
I’ll write again soon… Happy Holidays to everyone! Love you bunches, Jess
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Hi Miss Kaity Bug, You sure have been missed the last few weeks. Holidays are just not the same without you. At least this year’s holidays are shaping up a little better for me, Dad and Josh. Last year we were so heartbroken that you were gone that we truly had to scrounge for holiday cheer. This year is a little easier and we are grateful for the reminders that you are only a heartbeat away. Knowing you are here in spirit makes the occasion much easier to handle.
Daddy and I decorated your grave the other day and boy was it cold! The wind was blowing so hard I didn’t think we would ever get your flowers put together. I hope you like what we’ve have done. Daddy says your grave is by far the prettiest around!
Holiday shopping has gone a little better. I still have to skip the toys, the diapers, and the little girl’s clothes. I learned that I’m not the only one that it bothers. Josh and I were at Wal-mart and we cut through the kid’s section to get to the men’s clothes. We walked down the aisle that had diapers and Josh said, “Oh great…why did I come this way?” I had never told him that the baby stuff bothered me. I found out that night I wasn’t the only one bothered by purple packages of Pampers!
Daddy and I were shopping at Sam’s the other night and we found a huge Hershey kiss that was hollowed out chocolate. Inside the hollowed area was a bunch of little kisses. It made our hearts hurt because we both knew how much you would have liked that great big Hershey kiss!
There have been many times our hearts have ached for you this season but we just have to pray that your holiday season is filled with a whole bunch of chocolate kisses and everything else that you adore. It is our holiday prayer for you…
We miss you baby girl, Mommy, Daddy and Josh


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