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  1. Articles about Cord Blood Transplant from Duke University
  2. This Forum Needs a Boost
  3. ERT info updating?
  4. Weekly Treatments?
  5. Turning Blue??
  6. School, MPS, and ERT?
  7. regression??
  8. Newly Starting Enzyme and too much Energy!!
  9. Reactions
  10. Transplant and ERT
  11. Questions about glucosamine
  12. Hunter familie's, I have news!
  13. Sanfilippo familie's
  14. Thanks
  15. Morquio Registry
  16. Bone Marrow Transplant
  17. Zach update from Canada
  18. Hurlers/CBT/New England Journal of Medicine
  19. Clinical trials MPS 1, MPS 6
  20. News re MPS 7 research
  21. Benjamin from Norway- ERT Update
  22. MPS Trial update
  23. New form of ERT for MPS-1
  24. Hunters Research
  25. Missing ERT Treatments?
  26. ERT for Pompe
  27. BMT and then ERT
  28. Treatment beyond age 20?
  29. Sanfilippo and BMT
  30. ERT & Vision
  31. Please Read Here Before Posting in This Section
  32. Six Year Follow Up
  33. I accessed the Port.
  34. Pamidronate LATEST UPDATE 4/19/06
  35. ERT and reduction of GAGs
  36. QUESTION about BMT
  37. What I've learned about ERT this week.
  38. Time to get those teeth back from the tooth fairy?
  39. Email from TKT regarding I2S
  40. Chiropractic Care
  41. Zinc Supplements
  42. transplant question
  43. ERT BEFORE BMT???
  44. Hunters ERT Trial -news from England
  45. Tyler's FIRST ERT!!!
  46. DMAE helping symptoms?
  47. Help!! Too much energy and change in behavior!
  48. Huring legs
  49. Wonderful day for ERT
  50. Enzyme Reaction
  51. ERT #2-not so good!
  52. Reaction to ERT...
  53. BMT DONOR!!! UPDATE: 3-29-05
  54. yes
  55. Growth Hormones for post BMT Hurler Children
  56. Possible Cord Blood Transplant
  57. yes
  58. MORE wonderful news!!! NEW update 4-25-05
  59. treatment Length?
  60. Cost for ERT?
  61. Some interesting information on blood brain barrier
  62. MPS VI
  63. A list...
  64. Brenda and Terri HELP!
  65. One year of treatment! ERT
  66. ERT Date!!
  67. ERT Length? Pre-Med?
  68. ERICA'S ERT!!!
  69. First ERT
  70. Splint therapy
  71. Stem cell transplants
  72. 2nd ERT
  73. Tyler's chemo...UPDATE 6-5-05
  74. Naglazyme APPROVED for MPS VI!!!!!!!
  75. A step closer to ERT :)
  76. Cincinnati Children's Hospital
  77. Launch of Naglazyme for MPS VI
  78. CBT Question
  79. Alot of questions......
  80. MPS II Trials
  81. ERT before BMT
  82. How many days till neutrophil recovery post CBT?
  83. iq liquid
  84. Naglazyme MPS 6 Europe
  85. WE HAVE A DONOR!
  86. Here at Duke
  87. question about glyconutrients
  88. Stem Cell transplant/graft into brain of children
  89. MPS II results presented to ASHG
  90. Need information on Cord Blood
  91. Gene therapy
  92. Alyssa's ERT
  93. Other treatment for MPS II
  94. Lab results
  95. CNS Treatment
  96. Alyssa's ERT update
  97. Fats improve language skills
  98. Questions regarding BMT And donor
  99. Second BMT after intial graft failure. Any experience?
  100. Gene Therapy research for MPS IIIB moving ahead...
  101. Hello to everyone!!About ERT
  102. For parents to be...
  103. The benefits of ERT for MPS1 Hurlers
  104. Hailey Chavers' CBT last Wednesday
  105. Update on Hailey Chavers CBT
  106. Shire Collecting Insurance Information
  107. Genzyme FDA Approval
  108. ERT :D
  109. Elaprase
  110. Allison had infusion # 156 this weekend! 3years!
  111. Ports and ERT
  112. ERT Delayed...
  113. Melatonin
  114. In Celebration of Iyr on ERT!! Long..
  115. 4 years post transplant
  116. Sale on Genistein at LifeExtension.com
  117. BMT - How long to find a match?
  118. Hunter Trials
  119. TIME TO GO
  120. Elaprase-when in August??
  121. 5 out of 6 Match
  122. Gene therapy for MPSIIIB?
  123. Caring Bridge for IT trial
  124. stem cell info
  125. IT'S APPROVED!!!! - HUNTER SYNDROME DRUG !!!!!
  126. DYLAN WANTS JUICE
  127. Is medicaid covering Elaprase?
  128. Our ERT Milestones...
  129. ERT tests - Something to think about
  130. HELP!! DYL HAS A BAD RASH
  131. Is anyone else still waiting? Updated 8-24
  132. Karima's ERT MPS VI (I V Experience)
  133. Some of Karima's ERT Outcome
  134. Interesting Research for MPS IH
  135. Shock! Enzyme and Clinical Trial
  136. Caroline/Shire
  137. seizure medication
  138. a step closer to ERT :D
  139. The choice has been made
  140. ERT survival kit?
  141. Easier IV's
  142. Hands
  143. ERT - getting started
  144. August 31, 2006 ~ UPDATE with pics
  145. Update on Caitlin
  146. DYLAN HAS GVHD
  147. Can I get pros/cons of ERT and BMT for Hurler's?
  148. Raw Food & No sugar diet
  149. 2 down.......hundreds to go
  150. Happy ERT day!
  151. Happy ERT Day, Jack
  152. Elaprase Journal
  153. Starting this week!!!
  154. Joining the ERT Party - DELAYED !!!
  155. Isaac's ERT
  156. ERT Tomorrow
  157. Getting Ready for Transplant - Advice Please
  158. where did that belly go?!?!?!?!?!
  159. !st Home Infusion
  160. Anyone use Zeolite?
  161. Off to Cincinnati...
  162. HELP!!!!!!!??????????
  163. Another ERT start date
  164. slight reaction today
  165. Elaprase Side affects
  166. Cost
  167. Kraiggy's ERT Today...
  168. Chicago's Hope for Hunters Link
  169. Risks
  170. reaction and port placement
  171. heparin/saline
  172. How much time do you spend at the hospital for ERT?
  173. We're approved
  174. Itchy several hours later?
  175. Difference in Meds?
  176. Elaprase for Sanfilippo children?
  177. 4th Infusion- BMs-UpDate from 5th infusion
  178. Jack makes the big time Newspaper and web.
  179. Speaking w/Duke tomorrow re:CBT and Hunter's, Qs??
  180. Caitlin Update
  181. Infusion Time
  182. 1st infusion Pictures
  183. ear infection and ERT **UPDATE no reactions today!!!!!
  184. Sinus pressure
  185. Keep your fingers crossed-Updated!
  186. Logan's day :( -updated
  187. One Inch
  188. Looking good
  189. We did it!!!
  190. Dani's First Day of Campath *Updated Again Friday 10/20*
  191. #6
  192. ERT Infusions in Florida?
  193. immune system too strong for transplant?
  194. 75th infusion
  195. It's Sunday!!!!!
  196. Andrew's Big Day
  197. Logan's incredible shrinking tummy! (Pictures on CB site!)
  198. Shire press release ERT Hunter 19 October 2006
  199. No Drug
  200. Reaction- Updated 11-20
  201. How is Scotty?
  202. No ERT this week
  203. Belly Measurements
  204. Port - Home Health update
  205. #2 treatment
  206. UPDATE: Hives - No ERT This Week OR NEXT WEEK
  207. STOPPED GROWTH HORMONE THERAPY!!
  208. ERT
  209. Insurance billing
  210. Finally!!!!!!!!!!!
  211. Hunter Parents
  212. I'm sad
  213. glyconutrients
  214. Hopefully this will be the last trip to Houston
  215. more port problems
  216. A tiny step closer to ERT
  217. Ported
  218. #3 ERT
  219. Payton has his port
  220. Reaction today
  221. Dani did Great!!!
  222. Chills
  223. Question about BMT testing/donor match
  224. Hands
  225. Acid Reflux
  226. Liquid Zantac
  227. another reaction
  228. Hospitals, Newspapers, Ect...
  229. READ ME, READ ME, READ ME, READ ME, READ ME, READ ME
  230. NO treatment this week
  231. Medicaid has approved ERT--how long until infusion #1?
  232. What is your child's infusion rate of Elaprase?
  233. Shrinking
  234. Lucky #13
  235. Weight loss
  236. So far so good
  237. Tummy pics
  238. Miss Dani is Home!!!
  239. Oh, what a day!
  240. Good news!
  241. Number 3....not so good
  242. Woo Hoo!! We have a date :)
  243. OnePath form
  244. CBT vs. BMT
  245. No infusion this week
  246. Genistein too old?
  247. A Wonderful MPS II News Story
  248. More ERT Progress.
  249. I have a question about ERT
  250. PIC Line???