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  1. Angel Aaron
  2. CPR
  3. Seizures at School
  4. Art's "Come out poopy story" :)!!!
  5. Skin Problems?
  6. Stopped Walking
  7. Immunisations
  8. Trip to the ER
  9. Tubes in Ears
  10. potty training and MPS II
  11. MRI and CT scan
  12. Health shake that looks good maybe for MPS children too??
  13. Heart Echo
  14. Fragile x syndrome
  15. Fingers
  16. Car seats
  17. tonsils
  18. communicating hydrocephalus
  19. Sleep apnea?
  20. 11 ear infections in 17 months
  21. MRI RESULTS
  22. Allison's eye appointment
  23. Antibiotic allergies
  24. Oxygen, Sleep Apnea, Etc.
  25. Loss of vision
  26. Getting closer to an answer...
  27. Bleeding Issues
  28. A couple days of worry
  29. Seths Lumbar Puncture
  30. Sleep Apnea
  31. NEW WHEELCHAIR
  32. Mild Seizure
  33. Endoscopy and Ear tubes
  34. Port-a-Catheters
  35. Seroquel and Melatonin
  36. Aaron's Orthopedic Issues
  37. Cristian is home
  38. Going to Dallas
  39. Shawn's surgery
  40. A fright this morning!
  41. Seths post-Op appts
  42. We are home
  43. Need good Orthopaedic doctor in Georgia
  44. Hydrocephalus
  45. Wheelchair
  46. Update on Cameron Watkins and being put to sleep
  47. Cervicle spine compression
  48. Therapies Being Reduced by School
  49. How is Devon?
  50. occupational therapists
  51. results of Seths CT scan
  52. Schools and bussing
  53. PAMIDRONATE and MUCOLIPIDOSIS
  54. Cholestrol-MPS-and Statins
  55. STOPPED EATING
  56. I''m alittle worried
  57. MRI
  58. Signs of Possible Shunt Complications
  59. Crying
  60. Glucosamine
  61. Wheelcair or stroller
  62. loss of balance
  63. Heel Contractures/Tip Toe Walking
  64. Abnormal EEG
  65. Low Blood Counts
  66. HI Carrie!
  67. medications
  68. facial swelling?????
  69. Ty's test results
  70. Melatonin (not-MPS related)
  71. Sleep Study
  72. chest x ray
  73. Praise for no cardio problems!!!
  74. surgery for Conner
  75. Please help...medication suggestions
  76. Puberty?
  77. Scoliosis
  78. can carriers of hunters have the symptoms?
  79. Bowel Cramps-Lactulose-And Just Plain Fed Up!
  80. Fungal infection
  81. Gastroparesis and neurostimulators
  82. antibiotic prophylaxis
  83. Central Apnea
  84. Distonia/destonia, neurological posturing...Lindsey
  85. Seths update
  86. What disorder does your child (or you) have?
  87. Heel Contractures (cont.) - bracing
  88. Spoiled Rotten????
  89. 24/7 Oxygen use
  90. Well it is confrimed
  91. leg cramps
  92. Dr.'s Appointment
  93. Back to Seattle Children's Hospital
  94. New ride for Cristian
  95. What Kind of Questions?
  96. Intussusception for Chase
  97. Back Surgery
  98. Hernia
  99. sleep study
  100. Eyes, Teeth and Anesthesia
  101. Will's Test results
  102. isaacs hyper-behaviour
  103. Blood pressure
  104. DMG ~ Dimethylglycine
  105. Jack's Doctors Visits
  106. Sleep Issues (reposted from 7/21)
  107. Josh & Jake's Echocardigram
  108. Triger Digits???
  109. Growth Hormones
  110. Runny noses and frequent colds
  111. Stetching
  112. Low Heart Rate
  113. Gallbladder Question...
  114. Jack's Hearing test...ugh
  115. Zyrtec
  116. still not sleeping
  117. Lone Ranger Rides Again!
  118. dental work....
  119. LP Pressure Numbers??
  120. Sam's therapy AAAAARRRRRRGGGGGGHHHHHH!!!!!!
  121. 1/2 a Jack Update: HELP!
  122. Cardiomyopathy
  123. Moleculer Results
  124. Taylor's NEW chair...
  125. Chronic Sinusitis
  126. Individual differences in mps3- Why?
  127. RE: Bone Density Scan Scare
  128. tip toes and limping
  129. Testing for carriers
  130. Back Surgery
  131. PRAYERS FOR TAYLOR, JACOB, and RICKY
  132. Orthopedic Issues in Hunter Syndrome
  133. BMT re: sanfilippo
  134. My Theory about growth Hormones
  135. ANOTHER SPECIAL BOY NEEDS YOUR PRAYERS!!!!
  136. sleep study results
  137. Gastrostomy
  138. Jack's Surgery
  139. Diarrhea
  140. oxygen with a snotty nose???
  141. More Sleep Issues
  142. Dental Work- I hate it when I'm right...
  143. Tonsils & Adnoids
  144. shunt revisions.....
  145. 2 Sick Boys
  146. Frustrated - - LP/Hydrocephalus issues
  147. next update on Seth
  148. I need input FAST!!
  149. Insurance Letters
  150. Ty's Neuro Visit
  151. Up Date on Zach
  152. NEW MEDS
  153. C-PAP ---- HELP!!!!!!!!!!
  154. New Update on Zachey
  155. Medications for Hyperactive/Aggressive Behavior - Sanfillipo
  156. Caleb's Appointment
  157. Caleb Update
  158. Surgery
  159. Precocious Puberty
  160. WE HAVE FOUND A DOCTOR!!!!!!!!!!!!!!!
  161. Beta 1,3-Glucan
  162. Hunter's Help?
  163. Info on Seroquel and Chase
  164. Allison's appointments
  165. VIDEO-EEG &SANFILIPPO
  166. Jake's Surgery
  167. Taylor and her shunt surgery. Updated Fir. Sept 24th
  168. No Headack
  169. Baseline CT scan
  170. Knees Please
  171. William's Dental ENT Day
  172. MRI for Jennifer - (Updated 10-5-04)
  173. I want to Punt this Shunt
  174. Please Pray for Chase Veliz and his mom Rosemarie
  175. Hypertention
  176. SATS AND Heart Rates
  177. Under the Underwear Troubles -- UPDATED!!!!!!!
  178. Chase and shunt tap
  179. chicken pox - maybe???????
  180. Seizures? Help? Not MPS-related.
  181. LAUGHING SEIZERS
  182. Not taking fluids
  183. Bladder Infections
  184. What else could possibly happen this week??
  185. Abnormal Gait
  186. Port Replacement Surgery
  187. Ty's MRI is scheduled for next Tuesday the 28th
  188. We are headede back to the Hospital.
  189. Josh & Jake got Glasses!
  190. Teeth problem???
  191. Does anyone have this problem?
  192. Steve's knee is filled with blood. Anyone experienced this?
  193. Another week of doctors visits
  194. Update on Laynie
  195. Another Bone Marrow Boost
  196. Glaucoma
  197. Update on TY
  198. Please forgive my ignorance, but what does a shunt do?
  199. Its been a long night
  200. Carpel Tunnel
  201. I Don't Do Rubber Stamping!
  202. We get to meet yet another doctor
  203. Chase and congestive heart failure
  204. 60 Minutes airs Normal Pressure Hydrocephalus
  205. Flu Shot
  206. Shoulder MRI Results
  207. Update on Steve's swollen knee
  208. Deciding to Shunt or Not?
  209. Please refresh my memory about Hunter's & Tip toe walkin
  210. Drug Allergies
  211. So many questions...
  212. worse than normal diahreha
  213. Elliot having surgery this week
  214. Check up
  215. Taylor's going to the hospital again
  216. Jacob's report from Portland
  217. eye sight issues
  218. Aaron's Spinal Surgery
  219. 11/11 - Update;Jake's 2 1/2 year post-transplant check-up...
  220. Has anyone heard how Sydnee did with her surgery on 10-15?
  221. CT
  222. Growth Hormone
  223. Here we go again with Laynie
  224. Will having tests tomorrow
  225. cafine issues
  226. Loss of hearing without infection?
  227. Seth needs a shunt revision!
  228. Chase and Obsructive Airway
  229. Dental Work for Shelby
  230. Carpal Tunnel
  231. continuous pressure monitoring
  232. Help with Seths shunt again....
  233. Hand splints?
  234. Explain Different Shunts
  235. First Dentist Appt. (non-MPS-related)
  236. Taylor is sick again!!!! UPDATED AGAIN
  237. alternative treatments for joint pan
  238. Maybe I should have gone to be...
  239. I had a appointment today
  240. Seth update
  241. genetic counseling??
  242. Did anyone know?
  243. Updated~ Misty's Mom Passed Away
  244. I have the Shingles...
  245. AMY's SURGERY
  246. Bad bloodwork experience
  247. One bad PT appointment......
  248. EP Presents Lysosomal Storage Disorders MPS 1
  249. OOOOOps! I bragged too soon!
  250. Poor Andrew