- WORLD Symposium
- Disney Conference December 2004!!
- GLUCOSAMINE STUDY
- Latest issue of Courage!
- Disney World--December 2004!!
- Disney Dreamin' - New Resort Info!
- Northeast Regional Beach Pary
- Fundraising Ideas
- Education Booklet
- Dr. Munzer's Family Day
- From the National MPS Society RE: Casual Dress Fund Raiser
- Encouraging news from TKT
- MPS Symposium in Mainz - Germany
- BioMarin Making News Release TODAY on Phase 3 Aryplase-MPS6
- Blue Hair = Casual Dress for MPS
- Disney World - Curious about the numbers!
- Disney Again...When will you be arriving?
- Report MPS International Symposium Mainz
- Beach Party Pics!
- TKT gets fast track approval for Hunters ERT
- Financial help with conference expenses
- Texas families
- Question for those going to the conference, Car vs shuttles
- Interesting Links
- MPS Family Day at UNC
- Refrigerators at The Conference in rooms
- Looking for an MPS Walk/Run in Your Area?
- Disney Conference...where will you be staying?
- NORD 2004 Family Conference in Minneapolis
- MPS Forum Party at the Annual MPS Conference at Disney!
- Additional get-togethers at December conference
- More news from TKT regarding I2S for MPS II
- MPS Walk and Run LA!
- TKT's I2S for Hunter Syndrome Receives Office of Orphan Prod
- Error on Biomarin Race Invitations!
- Error on Biomarin Race Invitations!
- Actual costs for Disney conference as member of the society!
- Decmeber Park Hours are up on the WDW site!
- Disney Itinerary information
- Northwest 5K Walk/Run 2005!!
- 2nd Annual Run for Reese
- Change in the hotel for Disney Conference
- Just me (flip-flop)
- How many are going to Florida In December?
- Disney's Contemporary Resort
- Disney Magic Fireworks Cruise
- Latest Legislative eNews
- TKT's Research Findings on Intrathecal Delivery of I2S
- Christmas at WDW
- Houston MPS walk/run
- WDW Special Assistance Pass
- Lunch at Rainforest Cafe (Animal Kingdom) Friday, Dec 17
- Meals for December Conference Trip
- Prevention of neuropathology in the mouse model of MPS1
- Spencer's Birthday at Disney
- Rainforest Cafe NEW INFO please look ASAP!
- Nov. 16 conference registration deadline!!!!!!!!!!!!
- Chef Mickey's
- When will you be arriving?
- Arrivals and Departures...
- Transportation from the Airport
- Disney meal vouchers
- Florida Weather
- those going to Rainforest Cafe
- Magic Wishes cruise
- Disney clothes
- GKTW
- Hoop-de-Do
- MPS Confrence info
- see you all when we get there at disney!
- Flordia Conference WEATHER Update
- Stroller for a child with MPS II
- raising awareness
- hi thanks for making us feel soooooooo welcome!!!
- Had a great time at the conference
- Slideshow for 2004 Walk/Run LA
- EParent Teleconference
- Klenke Bowl 2005 ~ UPDATED Photo Story
- Polish research
- Fundraising Question
- MPS RIBBONS
- ERT for MPS6 coming soon!
- What are you doing on MPS awareness day?
- ERT for MPS II patients
- MPS Day and the Nasdaq
- ACTION REQUIRED -Congre. Resolution: Natl MPS Awareness Day
- BMT and ERT in the press!!
- Golf Tourney MPS fundraiser
- We got to say MPS on the news today
- Interesting Article about Hunter's Hope
- Guess what my Boss Said
- Benefit Concert March 4th Ohio
- media coverage
- Where are all the Elves?!
- Finally my last BIG MPS / ML Awareness effort
- Andrew's MPS Sign
- Heres the article and news clip
- Nasdaq Opening for Awareness Day
- Disney Conference Photo Album
- We made the paper
- Link to view Rosies news article
- Wristbands for Marrow Foundation
- T-Shirts
- Courage Bracelet Arrived Today
- Does any one know.....
- Fund Raising
- LA Walk/Run LA Ideas
- House Resolution....We still need your help!
- in the news . . . . . .
- WALK/RUN April 23rd in MICHIGAN
- New Website Offers Comprehensive Information on Hunter Synd.
- www.MPSVI.com
- Articles about ERT for MPS I in Canada
- Maryland/Tri State Social Gathering/Meeting
- TKT acquired by Shire - PRESS RELEASE
- WORLD Symposium 2005
- Come to the Beach
- 2005 WORLD Symposium
- Burlington Vermont Marathon-UPDATED 6-20-05
- Medicare/Medicade Waiver for Disabled Kids
- Midwest Gathering!!!!!! SATURDAY, JULY 30th ~ UPDATE
- EP Resource Guide ~ copies available
- Memorial Day Weekend in Williamsburg
- Fundraiser question
- I'm going to have to create my OWN Midwest Gathering!
- Atlanta Gathering
- Action Needed!
- Maryland Social Pictures are UP!!
- Cord blood article
- OHIO MPS Country Celebration
- LAST MIN CHANCE
- Polish research proving Genistein can help our children
- FUNDRAISER RESULTS
- A Letter From My Congressman
- Cincinnati Hospital doctors
- New MPS II study results!!
- UK MPS CONFERENCE NORTHAMPTON!
- Run For Reese/Jog For Jordan--UPDATE! 10/8/2005
- Walk and Run LA Information Updated slideshow!
- Courage and Directory
- Need TKT Results....
- statement on the use of Genistein in MPS patients
- Tommy's In The "US News & World Report"!!!
- For brief summaries of effects of genistein
- Andrew's Walk and Roll for MPS
- Shire's acquisition of TKT
- Need IEPs please!
- NORD Conference
- IDEA Alert
- Walk in Fort Worth, TX
- IDEA Alert ~ IMMEDIATE ACTION NEEDED!!!!!
- MPS VI in the news
- MPS/ML Walk/Run LA - Ideas please
- Anyone who is using the genistein
- Walk for Great Ormond Street Hospital BMT unit
- HELP HELP HELP ~ copies of IEP's needed!!!!
- Dash for Danny
- Helping before LA's Run! Local families
- Congrats to the MPS Board Members
- Houston MPS Run Walk and Roll
- Genistein project description
- hi everyone from kathy and katilynn preston
- Run for MPS in Baltimore today(Carolynn Faust)
- Run the Park for Maddy
- Run For Their Lives Run- Keller, Texas
- You'all have fun!
- Picnic in the Carolinas?
- New Calendar
- Florida events?
- FDA has it in their hands!!!
- Symposium on the role of soy
- European Medicines Evaluation Agency (EMEA)
- More trials with genistein in Italy!
- International Conference in Italy
- Exciting - Trials for Morquio A!
- Ambrotose from Mannatech
- Look at this!
- MD Skeptical about Genestein
- MPS Meeting In San Francisco
- St. Louis gathering ~ Saturday, April 8th
- Genistein and ERT
- MPS Awareness Day Fundraiser
- Good news
- 6 more monthes
- MPS6 ERT approved in Europe !!!!!!!
- MPS/ML family get together in KS
- MPS Awareness Day and School
- kick-A-Thon for Lee
- "come out of your shell for MPS/ML" UPDATED!!!
- Dress for MPS Awareness Day
- MPS Awareness "Suckers"
- Help Us "Lick" MPS!!! UPDATED (3 times!)
- Riding to Wipe Out MPS!!
- RIDDLE FOR MPS.
- MPS Day - The Woodlands/Houston
- MPS AWARENESS POSTER
- FOR MPS DAY. UPDATE ON HOW IT WENT.
- Shire Press Release
- Coins for Clay
- news article
- MPS/ML meeting in Chicago in June
- MPS meeting in Houston
- Something new about soy
- June 25, 2006 Northeast Beach Party
- contacting Shire (formerly TKT)
- 4 more monthes
- Finally a Date for Ride to Wipe Out MPS!
- MPS Conference, Another Question
- Andrew's Walk and Roll
- Central CA MPS Gathering Saturday,May 20th Photos added 5/23
- CYCLE conference??
- WI MPS/ML - update a change to a MPS/ML Day at the Zoo..
- Atlanta MPS Family Meeting
- MPS/ML CONFERENCE 2006
- An Invitation to All...
- Free resources...
- BOWLING FOR HAILEE 2006
- Fundraiser May 13th
- scholarships
- MONKEY PARTY
- Childcare at the conference
- Genzyme CM for West Coast States
- OKAY ITS SETTLED I'M DUMB......
- Party Time
- official opening of www.alliancesanfilippo.com
- PICTURES from St. Louis Get Together
- MPS IIIb trial?
- JUST A REMINDER!!!
- Minneapolis Meeting July 8, 2006
- Lysosomal Disease Network, Dec 7-9, 2006 Orlando, FL, USA
- FDA extends review
- Fundraiser update
- Pictures needed
- Sanfilippo Exchange
- MPS in dogs, joint & bone disease, and diagnosis
- Walk & Run LA - Family Meeting Information update
- LETS GET CREATIVE!
- Andrew's Walk and Roll for MPS
- MPS Conference
- Venice Symposium?
- Conference Arrivals and Departures
- weather for the conference
- How are we going to know each other??
- Items needed for the "Our Night" party
- ERT APPROVED for MPS II!!!!!
- Newport Aquarium
- Conference Stuff
- Conference Question, Help!, Updated
- elaprase.com
- The conference was great!!