 |
MPS/ML Forum Dot ComAn Internet Gathering Place for MPS/ML Families |
Login
Register
FAQ
Search| It is currently Tue Sep 07, 2010 9:02 am |
|
MPS/ML Forum Dot ComAn Internet Gathering Place for MPS/ML Families |
| It is currently Tue Sep 07, 2010 9:02 am |
|
All times are UTC - 5 hours [ DST ] |
Moderator: Paulina Jump
 |
Page 1 of 11 |
[ 521 topics ] | Go to page 1, 2, 3, 4, 5 ... 11 Next |
|
|
|||||||
| Topics | Author | Replies | Views | Last post | |||
|---|---|---|---|---|---|---|---|
 |
Edited on 2/2/09 Post all Disney Conference News here! | 86 |
3987 |
Thu Mar 12, 2009 9:37 am |
|||
 |
IT trials | 7 |
425 |
Wed Mar 11, 2009 2:39 pm |
|||
|
Anyone else get this? | 12 |
293 |
Tue Mar 10, 2009 2:13 pm |
|||
|
Family get together | 12 |
208 |
Sat Mar 07, 2009 1:19 pm |
|||
|
3rd Annual Holden's Hope Day | 9 |
179 |
Fri Mar 06, 2009 6:36 pm |
|||
|
Has anyone seen this? | 20 |
478 |
Mon Mar 02, 2009 1:28 pm |
|||
|
Genistein & Sanfilippo | 9 |
217 |
Sat Feb 28, 2009 1:06 pm |
|||
|
Ponstan and Voltarin | 17 |
678 |
Wed Jan 28, 2009 6:08 pm |
|||
|
Sanfilippo On Good Day LA - UPDATED CORRECT LINK | 1 |
164 |
Sun Jan 25, 2009 2:46 pm |
|||
|
Clinical Assessment Study of Subjects With Morquio | 1 |
119 |
Sat Jan 24, 2009 4:22 am |
|||
|
World Rare Disease Day 2009 | 4 |
183 |
Fri Jan 23, 2009 7:15 pm |
|||
|
Please HELP with MPS II Research!! | 16 |
538 |
Fri Jan 23, 2009 12:04 pm |
|||
|
Sanfilippo Seminar/Luncheon | 11 |
342 |
Wed Jan 21, 2009 12:23 pm |
|||
|
does anyone know why the MPS Society | 2 |
195 |
Fri Jan 16, 2009 11:27 am |
|||
|
Changes in the Board of Directors of the MPS Society | 6 |
397 |
Thu Jan 15, 2009 9:25 pm |
|||
|
American Pain Foundation new opportunity | 1 |
106 |
Thu Jan 15, 2009 12:00 pm |
|||
|
World Symposium | 4 |
347 |
Mon Jan 05, 2009 1:28 am |
|||
|
New Metabolic dr and new info trials | 4 |
349 |
Sun Dec 28, 2008 3:47 am |
|||
|
Treatment MPSIII gets orphan drug designation | 17 |
814 |
Sun Dec 21, 2008 2:02 pm |
|||
|
re: Symptomatic carriers? | 25 |
953 |
Thu Dec 04, 2008 5:33 pm |
|||
|
Ont Gov paying for elaprase in some cases | 25 |
761 |
Fri Nov 14, 2008 1:42 pm |
|||
|
Andrew's Walk and Roll for MPS | 15 |
530 |
Wed Nov 12, 2008 3:06 pm |
|||
|
MPS Family Day | 6 |
329 |
Fri Oct 31, 2008 12:19 am |
|||
|
2 YEARS ON ERT | 3 |
226 |
Thu Oct 30, 2008 7:34 am |
|||
|
Sasha's website is up! | 4 |
201 |
Wed Oct 29, 2008 10:04 pm |
|||
|
CaringBridge Site | 2 |
151 |
Tue Oct 28, 2008 10:45 am |
|||
|
Disney Conference Question | 12 |
635 |
Sun Oct 26, 2008 7:11 pm |
|||
|
Newpaper article about Andrew's walk | 6 |
262 |
Fri Oct 17, 2008 4:45 am |
|||
|
Where is the 2009 Symposium being held? | 23 |
989 |
Thu Oct 16, 2008 11:08 am |
|||
|
New website launched on clinical trials in children | 4 |
255 |
Sun Oct 05, 2008 6:37 pm |
|||
|
Sept 20th Walks.. | 2 |
153 |
Fri Oct 03, 2008 10:23 am |
|||
|
Pictures | 11 |
355 |
Tue Sep 30, 2008 2:14 pm |
|||
|
MPS and ML Family Fundraisers and Events 2008! | 14 |
453 |
Mon Sep 29, 2008 10:57 pm |
|||
|
SSA Seeking Info From Our Docs | 7 |
278 |
Wed Sep 24, 2008 7:52 am |
|||
|
Iowa walk runs !!! | 18 |
468 |
Tue Sep 16, 2008 7:38 am |
|||
|
LA Run and Family Meeting- Hotel Deadling September 18 | 2 |
142 |
Sat Sep 13, 2008 1:56 pm |
|||
|
LA Walk/Run and Family Meeting | 9 |
346 |
Sun Aug 31, 2008 9:35 pm |
|||
|
St. Louis area get together AUGUST 9 | 22 |
726 |
Sun Aug 17, 2008 6:01 pm |
|||
|
excellent resource | 6 |
459 |
Mon Aug 11, 2008 3:54 pm |
|||
|
B.O.D papers?? | 0 |
221 |
Fri Aug 08, 2008 9:18 pm |
|||
|
ERT in Ontario??????? | 6 |
367 |
Sat Aug 02, 2008 2:36 am |
|||
|
MPS/ML book | 2 |
245 |
Wed Jul 30, 2008 4:21 pm |
|||
|
Lab Tests Link | 1 |
175 |
Sun Jul 27, 2008 6:30 pm |
|||
|
Info from GOLD (Global Organization for Lysosomal Diseases) | 5 |
410 |
Sat Jul 26, 2008 2:23 pm |
|||
|
MPS SUMMER SEMINAR | 16 |
588 |
Sat Jul 26, 2008 12:01 am |
|||
|
Satruday meeting Panel | 6 |
238 |
Fri Jul 25, 2008 7:35 am |
|||
|
WORLD Symposium 2009 | 2 |
264 |
Mon Jul 21, 2008 1:16 am |
|||
|
Isaac & John Mayer | 10 |
438 |
Sat Jul 19, 2008 7:04 pm |
|||
|
Request for Sanfilipo pictures and stories | 14 |
502 |
Sat Jul 19, 2008 8:38 am |
|||
|
November 1st Meeting - Milwaukee, WI | 3 |
237 |
Fri Jul 18, 2008 6:09 am |
|||
|
Page 1 of 11 |
[ 521 topics ] | Go to page 1, 2, 3, 4, 5 ... 11 Next |
|
All times are UTC - 5 hours [ DST ] |
Who is online |
Users browsing this forum: No registered users and 1 guest |
|
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum |
Go to page: 
![New posts [ Popular ]](./styles/subsilver2/imageset/folder_new_hot.gif "New posts [ Popular ]"){kind=small}
![New posts [ Locked ]](./styles/subsilver2/imageset/folder_lock.gif "New posts [ Locked ]"){kind=small}
