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MPS/ML Forum Dot ComAn Internet Gathering Place for MPS/ML Families |
| It is currently Fri Sep 10, 2010 9:52 am |
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All times are UTC - 5 hours [ DST ] |
Moderator: Barbara Pryor
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| Topics | Author | Replies | Views | Last post | |||
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| Announcements | |||||||
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Please Read Here Before Posting in This Section | 0 |
704 |
Wed Sep 29, 2004 5:47 pm |
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| Topics | |||||||
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Acai Berry | 9 |
955 |
Mon Mar 09, 2009 6:47 am |
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showing signs of a cold - ERT | 10 |
290 |
Sun Mar 08, 2009 1:24 pm |
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Appt with Dr Wood | 4 |
154 |
Sat Mar 07, 2009 7:15 pm |
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Cancer Miracles | 2 |
151 |
Tue Mar 03, 2009 8:49 am |
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aggravated about first home infusion..... | 18 |
343 |
Sat Feb 28, 2009 10:57 am |
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Autism and Genistein? | 3 |
150 |
Mon Feb 23, 2009 8:17 pm |
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Good News Bad News | 10 |
249 |
Mon Feb 23, 2009 4:04 pm |
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ERT TOMORROW | 7 |
131 |
Fri Feb 20, 2009 12:48 am |
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Approved for Growth Hormones | 5 |
146 |
Wed Feb 18, 2009 1:00 am |
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questions about Genistien | 5 |
217 |
Fri Feb 13, 2009 7:30 am |
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Is this okay to give Trey? (Patty, you will probably know ;) | 10 |
328 |
Tue Feb 10, 2009 11:58 am |
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Effects of taking a break from ERT | 5 |
170 |
Tue Feb 10, 2009 8:59 am |
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Home Infusions!!!! | 8 |
157 |
Tue Feb 10, 2009 12:37 am |
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First Home Infusion!!! | 11 |
410 |
Wed Feb 04, 2009 1:58 pm |
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hospital to home infusions? | 5 |
146 |
Wed Feb 04, 2009 1:49 pm |
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maybe a confusing question about GAGs...... | 3 |
226 |
Fri Jan 23, 2009 4:50 pm |
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Results from Elaprase | 16 |
895 |
Thu Jan 15, 2009 7:01 am |
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MPS IIIB and Glucosamine and Genistein | 4 |
254 |
Wed Jan 14, 2009 8:19 pm |
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More Knee Stapling Questions | 5 |
292 |
Sun Dec 28, 2008 4:06 am |
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foods to counteract radiation from x-rays etc | 2 |
180 |
Wed Dec 24, 2008 5:39 pm |
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Dog Therapy for Special Needs Children? | 6 |
272 |
Mon Dec 22, 2008 1:59 pm |
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Home infusion question | 2 |
140 |
Sat Dec 20, 2008 12:39 pm |
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Skipping a week | 15 |
455 |
Thu Dec 18, 2008 12:12 pm |
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Growth hormone clinical trial | 11 |
502 |
Wed Dec 17, 2008 12:12 am |
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Clinical Trials | 2 |
206 |
Fri Dec 12, 2008 1:07 pm |
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Baclofen Pumps | 1 |
161 |
Wed Dec 03, 2008 6:20 pm |
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HAAPY BIRTHDAY JACK | 7 |
213 |
Wed Dec 03, 2008 12:17 pm |
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CT Scan and Lung shadows | 9 |
460 |
Fri Nov 21, 2008 4:07 pm |
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1 year Anniversary of Diagnosis and Eleprase | 4 |
262 |
Thu Nov 20, 2008 2:26 pm |
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oral/transdermal enzymes | 1 |
168 |
Thu Nov 20, 2008 6:35 am |
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Siblings | 13 |
576 |
Thu Nov 06, 2008 4:00 pm |
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better doctors | 4 |
250 |
Mon Nov 03, 2008 2:40 pm |
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When should Clay's bloodwork be done? | 7 |
354 |
Sun Nov 02, 2008 10:50 am |
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pediatric chiropractor & acupuncture | 11 |
298 |
Sun Nov 02, 2008 10:40 am |
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ERT for MPS IV Morquio | 11 |
526 |
Fri Oct 24, 2008 9:48 pm |
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home infusions...where do you put all the stuff????? | 14 |
498 |
Tue Oct 07, 2008 8:27 am |
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2 years on Elaprase! | 17 |
519 |
Wed Oct 01, 2008 1:00 pm |
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Alyssa's Reaction to ERT | 13 |
429 |
Wed Oct 01, 2008 12:40 pm |
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Shire | 13 |
502 |
Wed Oct 01, 2008 9:28 am |
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Vitamin C, E & NSAIDs to do with inflammation | 3 |
188 |
Tue Sep 30, 2008 12:08 am |
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Developmental Intake/Invetory | 2 |
196 |
Tue Sep 23, 2008 12:29 pm |
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Correction of Hunter Syndrome in mice... | 7 |
521 |
Mon Sep 22, 2008 2:39 pm |
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genistein- starting and stopping | 4 |
280 |
Thu Sep 18, 2008 5:51 am |
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Neuro-psych testing | 14 |
450 |
Mon Sep 08, 2008 3:01 pm |
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Home infusions - finding the right nurse | 7 |
279 |
Sat Sep 06, 2008 3:28 pm |
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Liam admitted for BMT 8/4 | 23 |
698 |
Tue Sep 02, 2008 10:34 pm |
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Autism-supplements | 7 |
293 |
Thu Aug 28, 2008 4:45 pm |
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muscle medication | 7 |
236 |
Mon Aug 25, 2008 9:18 pm |
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Lifetime Maximum | 13 |
425 |
Fri Aug 22, 2008 6:43 pm |
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Update on Taylor's ERT | 9 |
326 |
Sun Aug 17, 2008 6:21 pm |
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