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An Internet Gathering Place for MPS/ML Families
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No new posts Iwon players, get your clickers clicking...vvvveeerrrrmmmmmm

in Coconut Lounge

NelsonGirls

0

113

Sun Mar 01, 2009 9:43 pm

NelsonGirls View the latest post

No new posts Think you don't have time to raise 5000. View my Tricks

in Coconut Lounge

NelsonGirls

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104

Sun Feb 22, 2009 3:29 pm

NelsonGirls View the latest post

No new posts Exercise give the brain a workout too!

in Coconut Lounge

PattyT

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108

Fri Jan 30, 2009 8:51 pm

PattyT View the latest post

No new posts Home page Update! 11/20/08

in Coconut Lounge

Jessica

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503

Thu Nov 20, 2008 9:58 pm

Jessica View the latest post

No new posts Another Ortho-spine surgeon possibly with experience

in Medical Issues

ericajth

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107

Tue Nov 18, 2008 5:11 pm

ericajth View the latest post

No new posts Need Something Now? Post it HERE!

in Coconut Lounge

kindallnelson

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199

Wed Nov 12, 2008 10:20 pm

kindallnelson View the latest post

No new posts LA Run and Family Meeting

in Coconut Lounge

Tami

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93

Mon Sep 01, 2008 7:33 pm

Tami View the latest post

No new posts B.O.D papers??

in The Latest News About MPS/ML

ericajth

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222

Fri Aug 08, 2008 9:18 pm

ericajth View the latest post

No new posts Admin Email Address

in NEW FORUM LOCATION!!! Updated 3/17/09 9:00 P.M.

Jessica

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217

Wed Mar 05, 2008 12:50 pm

Jessica View the latest post

No new posts International Symposium 2008

in Day to Day Issues with MPS/ML

Moonstoners

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206

Sun Feb 03, 2008 5:29 pm

Moonstoners View the latest post

No new posts America's Giving Challenge for The National MPS Society

in The Latest News About MPS/ML

STACEY_M

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243

Sun Jan 27, 2008 6:01 pm

STACEY_M View the latest post

No new posts testing

in Technical Issues with Using the Forum/Testing Grounds

brooke

0

178

Thu Jan 03, 2008 8:55 pm

brooke View the latest post

No new posts just testing

in Technical Issues with Using the Forum/Testing Grounds

Iris

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207

Fri Nov 02, 2007 4:28 pm

Iris View the latest post

No new posts updated

in Coconut Lounge

zacheys mom

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169

Fri Oct 26, 2007 10:13 pm

zacheys mom View the latest post

No new posts Q and A's about my IT/Shunt

in Medical Issues

ericajth

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164

Sun Aug 19, 2007 2:04 am

ericajth View the latest post

No new posts private messages?

in Technical Issues with Using the Forum/Testing Grounds

Monica Green

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230

Tue Jul 24, 2007 10:00 pm

Monica Green View the latest post

No new posts Karen Wagenbrenner

in Coconut Lounge

hankandcarolyn

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198

Fri Jul 20, 2007 11:22 am

hankandcarolyn View the latest post

No new posts testing

in Technical Issues with Using the Forum/Testing Grounds

Jessica

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209

Fri Jun 29, 2007 6:24 am

Jessica View the latest post

No new posts Testing Forum

in Technical Issues with Using the Forum/Testing Grounds

Jessica

0

250

Fri Jun 29, 2007 6:14 am

Jessica View the latest post

No new posts Testing Forum

in Technical Issues with Using the Forum/Testing Grounds

Jessica

0

213

Fri Jun 29, 2007 6:09 am

Jessica View the latest post

No new posts Another Awareness Event!

in The Latest News About MPS/ML

ericajth

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213

Thu Jun 28, 2007 3:49 pm

ericajth View the latest post

No new posts Call. all moms with child. with MPS ll on Canada's E. Coast

in The Latest News About MPS/ML

nats mom

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204

Fri Jun 15, 2007 8:44 pm

nats mom View the latest post

No new posts Pharma Sponsorship??

in The Latest News About MPS/ML

ericajth

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211

Fri Jun 01, 2007 11:10 pm

ericajth View the latest post

No new posts Happy birthday

in Emotions

ceniaandpaulmom

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163

Sun May 20, 2007 3:52 pm

ceniaandpaulmom View the latest post

No new posts Genzyme Registries Meetings

in The Latest News About MPS/ML

ericajth

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223

Fri May 11, 2007 7:38 pm

ericajth View the latest post

No new posts Update......

in Medical Issues

Monica Green

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201

Wed May 09, 2007 7:26 pm

Monica Green View the latest post

No new posts MPS II Research in Canada

in The Latest News About MPS/ML

Deb

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212

Tue Mar 27, 2007 10:44 am

Deb View the latest post

No new posts Do you have this from last Conference...

in The Latest News About MPS/ML

ericajth

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222

Mon Mar 19, 2007 8:20 pm

ericajth View the latest post

No new posts Funds to support local community projects

in Coconut Lounge

STACEY_M

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144

Fri Mar 16, 2007 5:37 pm

STACEY_M View the latest post

No new posts Gene Tests Review

in The Latest News About MPS/ML

ericajth

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180

Fri Mar 16, 2007 11:33 am

ericajth View the latest post

No new posts Prednisone and Hydrocortisone treatment...

in Forms of Treatment

ericajth

0

177

Sat Feb 24, 2007 12:41 pm

ericajth View the latest post

No new posts Children of Helen House

in Coconut Lounge

thebroadleys

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214

Tue Feb 20, 2007 7:33 pm

thebroadleys View the latest post

No new posts C-PAP machine available for anyone who needs it

in The Latest News About MPS/ML

THEmps2mom

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242

Wed Jan 17, 2007 9:25 am

THEmps2mom View the latest post

No new posts Thinking of you and Tommy

in Emotions

jguilfoyle

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213

Mon Nov 27, 2006 12:46 am

jguilfoyle View the latest post

No new posts Thanks

in Medical Issues

shell4aid

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236

Tue Nov 07, 2006 9:49 am

shell4aid View the latest post

No new posts 1st infusion Pictures

in Forms of Treatment

hankandcarolyn

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235

Wed Oct 11, 2006 6:07 pm

hankandcarolyn View the latest post

No new posts Cymbalta

in Medical Issues

ericajth

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223

Wed Oct 11, 2006 4:27 pm

ericajth View the latest post

No new posts Difference in Meds?

in Forms of Treatment

ericajth

0

186

Sat Oct 07, 2006 11:14 am

ericajth View the latest post

No new posts Itchy several hours later?

in Forms of Treatment

ericajth

0

209

Fri Oct 06, 2006 5:51 pm

ericajth View the latest post

No new posts Aldurazyme Dose, tiredness?

in Medical Issues

ericajth

0

225

Fri Oct 06, 2006 5:37 pm

ericajth View the latest post

No new posts Tuberous Sclerosis?

in Medical Issues

Leslie

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220

Tue Oct 03, 2006 9:53 pm

Leslie View the latest post

No new posts Head Count

in Medical Issues

Oshabb

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246

Mon Jun 12, 2006 12:00 am

Oshabb View the latest post

No new posts Calling all birthdays!

in Emotions

DebbieV76

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238

Thu Jun 01, 2006 3:42 pm

DebbieV76 View the latest post

No new posts Love Katie's Pic!!!!

in Coconut Lounge

ericajth

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210

Wed May 31, 2006 9:05 pm

ericajth View the latest post

No new posts Caringbridge Site Updates!!!

in Coconut Lounge

ericajth

0

239

Sat May 06, 2006 11:36 pm

ericajth View the latest post

No new posts Genzyme CM for West Coast States

in The Latest News About MPS/ML

ericajth

0

233

Wed Apr 26, 2006 11:46 am

ericajth View the latest post

No new posts Atlanta MPS Family Meeting

in The Latest News About MPS/ML

Alicemm

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273

Fri Apr 07, 2006 5:15 pm

Alicemm View the latest post

No new posts filling down.

in Emotions

zacheys mom

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154

Mon Mar 27, 2006 5:09 pm

zacheys mom View the latest post

No new posts COngeital Heart Poem for V-day!!

in Emotions

ericajth

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220

Tue Feb 14, 2006 7:19 pm

ericajth View the latest post

No new posts John's Hopkins...

in Medical Issues

Karen L. Efird

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268

Mon Feb 06, 2006 3:31 am

Karen L. Efird View the latest post

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