MPS/ML Forum Dot Com

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Read here to view important announcements or updates about the forum.

Moderator: Sheila George

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Fri Apr 11, 2008 2:20 pm

Jessica

This forum is for introducing yourself to other members. Tell us who you are and who the special child is in your life.

Moderator: Paulina Jump

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Fri May 16, 2008 10:23 pm

kathiecan

Surgeries, doctor’s appointments, and other medically related challenges that our MPS/ML children encounter.

Moderator: Barbara Pryor

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Fri May 16, 2008 9:23 pm

Tami

This area is for the daily issues we encounter with raising a special child. The concerns in this forum are not necessarily “medically related” but discuss issues of school, yearly IEP’s, skin problems, or other challenges we face on a daily basis.

Moderator: Sheila George

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Fri May 16, 2008 9:11 pm

Misty Luthcke

For children and family members who are considering, or who are currently undergoing a form of treatment for MPS/ML such as Bone Marrow Transplants or Enzyme Replacement Therapies.

Moderator: Barbara Pryor

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Fri May 16, 2008 11:04 pm

Sharon Cochenour

The title says it all! This is our hangout and not all subject material pertains to MPS/ML. It’s our get-away from the hubbub so let’s have fun!

Moderator: Sheila George

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Fri May 16, 2008 9:23 pm

aaronsmom1027

Please post all news updates relating to Research, Fund Raisers and Upcoming Conferences here.

Moderator: Paulina Jump

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Fri May 16, 2008 1:07 pm

nats mom

This forum is dedicated to the emotions we all feel as MPS/ML parents. Share your funny stories, jokes, birthday announcements, wedding anniversaries, and even on sadder occasions, stories of grief.

Moderator: Paulina Jump

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Fri May 16, 2008 10:43 pm

Barbara Pryor

Birthday and Anniversary Calendar for MPS & ML Children & Siblings who are NOT members of the forum. For regular members, please update your birthday information in your "User Control Panel" at the top of the forum. Inside your user control panel click on "Profile". You will see an area to update your birthday information. For registered members, your birthday will automatically show up under the birthday section (on your special day) but ONLY if you update your profile section.

If you are having trouble using this forum please post here. Also you can use this forum to make your first post and test your wings! Try out your new signature line or photo or whatever feature you may be trying to add.

Moderator: Sheila George

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Sat May 10, 2008 4:24 pm

Jessica

A private forum. Whether you are a child afflicted with MPS/ML, have a sibling with MPS/ML or a child involved with MPS/ML in any manner, this is your very own section to voice your opinions! Access is granted by Administration only.

You can apply for membership by clicking on the link at the very top of the forum that says: “Usergroups.” Choose the group “Funny Monkeys” from the drop down box. Click on "View Information." You should see a place that asks the Group Leaders for access to the forum.

Moderators: Barbara Pryor, tylersmommy

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Thu May 15, 2008 7:18 pm

Sammie

A Private Forum. This area is by subscription and is viewable only to the members who are granted access.

Its purpose is to provide a haven for the members of the forum who would like their conversations to remain private. Only Adult members can join and it is required that you have introduced your family (In the Introduction Section of the forum) and have made a minimum of 10-20 posts on the open forum. (These requirements can be altered if advised from a staff member or long time member of the forum who can validate your identity).

You can apply for membership by clicking the link at the very top of the forum that says: “Usergroups.” Choose the group “The Private Side of the Island” from the drop down box. Click on "View Information." You should see a place that asks the Group Leaders for access to the forum.

Moderators: Sheila George, Paulina Jump, Barbara Pryor

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Fri May 16, 2008 5:31 pm

ClbsMm2000

A Private Forum. This area is by subscription and is viewable only to the members who are granted access. Its purpose is to provide a haven for Dads of the forum who would like their conversations to remain private. Only MPS/ML fathers can join and it is required that you have introduced your family (In the Introduction Section of the forum) and have made a minimum of 10-20 posts on the open forum. (These requirements can be altered if advised from a staff member or long time member of the forum who can validate your identity). You can apply for membership by clicking the link at the very top of the forum that says: “Usergroups.” Choose the group “For Dads Only” from the drop down box. Click on "View Information." You should see a place that asks the Group Leader for access to the forum.

Moderator: marcusdad

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Sun Apr 13, 2008 3:14 pm

Austin's daddy

A Private Forum. This area is by subscription and is viewable only to the members who are granted access.

Its purpose is to provide a haven for families who have already lost a child and also those who are in the last stages of illness. Anyone can join but please be aware that the family members posting here will be talking about situations that some people may find difficult.

You can apply for membership by clicking on the link at the very top of the forum that says: “Usergroups.” Choose the group “Final Years” from the drop down box. Click on "View Information." You should see a place that asks the Group Leaders for access to the forum.

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Thu May 15, 2008 8:04 pm

Sasha's Mom

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