This site made its debut in 2000.  The forum is owned and operated by MPS and ML family members just like yourself.  We are comprised  of three Administrators, nine helpers and as of today, 628 family members.  Each and every member of the forum are anxious to assist you along your journey.

For newly diagnosed parents, the news you’ve recently been given is heartbreaking and worrisome.  The last thing you want to do is learn your way around this site, but there are so many families here to help you. “The Island,” as we fondly refer to the forum, is a safe haven and a wealth of information from family members who’ve already walked your path.

If you have any problems with learning the forum please read the Forum FAQ's page. If your questions are still not answered, please email us and we'd be happy to help you.

We look forward to seeing you on the forum!

Mom to Kaitlynn Wellman (April 3, 1991 ~ August 9, 2004).  MPS Type I, Hurler Syndrome.

• March 22, 2009 - Password not working?  Forum Photo is no longer visible?  If you are trying to learn about the new forum and did not receive the information packet to guide you, please email Jessica for further assistance. 

• November 20th, 2008 -  If you would like your family to be linked on this page - Please Contact Jessica and include the following information in your email:   

1. Your Family Name
2. Your Forum User Name
3. Your Child's Name
4. The link to your site
5. Any other information you would like to add

• November 4th, 2008 -  I've added the new slide show of photos to the top of this page and I'm collecting pictures for the next rotation!  (The photos are changed every six months).   Contact Jessica Here, and please include your child's name and your user name on the forum in the content.  I'll add the new photos sometime in early spring.  Don't forget bathing suit photos!  I'll try to add one or two more images to the island picture. The island photos added will be first come first serve!