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Written by Jessica
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Wednesday, 13 January 2010 11:50 |
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 "Extraordinary Measures", starring Harrison Ford and Brendan Fraser is set to appear in theaters on January 22, 2010. The movie is based on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder.
The movie promo has a section on their site called the Inspirational Quilt. Tami Slawson has submitted an MPS Awareness video that she made. The video that receives the most votes will win the grand prize of $10,000. If she wins, she would like to give the funds to the National MPS Society.
UPDATE: Voting is now over for the videos and the winner will be announced February 9th! Thank you so much for voting!
In case you haven't seen Tami's video, this is the one you are looking for. ~The video is not compressed and may take a few minutes to load. |
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This site made its debut in 2000. The forum is owned and operated by MPS and ML family members just like yourself. We are comprised of three Administrators, nine helpers and as of today, 628 family members. Each and every member of the forum are anxious to assist you along your journey.
For newly diagnosed parents, the news you’ve recently been given is heartbreaking and worrisome. The last thing you want to do is learn your way around this site, but there are so many families here to help you. “The Island,” as we fondly refer to the forum, is a safe haven and a wealth of information from family members who’ve already walked your path.
If you have any problems with learning the forum please read the Forum FAQ's page. If your questions are still not answered, please email us and we'd be happy to help you.
We look forward to seeing you on the forum!
Owner of this site and mom to Kaitlynn Wellman (April 3, 1991 ~ August 9, 2004). MPS Type I, Hurler Syndrome. |
- January 13th, 2010 - New Poll question is up! Hope to see you in Los Angeles!
- November 20th, 2008 - If you would like your family to be linked on this page - Please Contact Jessica and include the following information in your email:
- Your Family Name
- Your Forum User Name
- Your Child's Name
- The link to your site
- Any other information you would like to add
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